Mikal Sue’s Chili Supper and Silent Auction this Weekend in Warsaw [INTERVIEW]
Mikal Sue is a little girl diagnosed with a neurodegenerative disease called Sanfilippo Syndrome. There will be a chili supper and silent auction to raise money to help Mikal Sue and her family go to the National MPS Conference and pay for medical expenses not covered by insurance.
Sanfilippo is a genetic disorder where a defective gene must be passed down from both parents. Mikal is lacking an enzyme that breaks down the sugars we make naturally and causes these sugars to build up over time. As the sugars accumulate in her body, she loses more and more skills. The syndrome causes significant neurological symptoms, including severe intellectual disability. IQs may be below 50.
Most persons with Sanfilippo syndrome live into their teenage years. Some patients live longer, while others with severe forms die at an earlier age. She will eventually lose the ability to walk and communicate. Soon she will lose the ability to swallow and will end up spending her days in a wheelchair or bed. There is no treatment or cure.
The folks behind Mikal Sue's Miracle Run are having another event now, the Chili Supper and Auction to to help little Mikal Sue and her family attend the national MPS conference. Jennifer Besse with the group came by the studio to tell us a little about Sanfilippo, the supper and auction as well as the little girl that inspires it all.
It’ll take place on October 18 from 4:00 to 7:00 p.m. at the Warsaw North Elementary Cafeteria. The auction begins at 4:00 p.m. and ends at 6:30 p.m. They’ll have a bake sale with pies, cupcakes, cakes and cookies. The cost is $5 a person for chili with fixings, drink and a dessert. The silent auction will include gift certificates, a hunting basket, salon certificates, coffee, 31 Bags, Avon, a fitness basket and many more items.
For more information, call 660-723-3360. Money raised goes to fight Sanfilippo Syndrome (MPS IIIA). Find out more by visiting their website, their Facebook page, or email John at firstname.lastname@example.org. Let's all pitch in and help this little girl and her family attend this conference to speak with others in their situation.